Our aim is to provide Kyle with his own space, away from the medication, nebulisers and physiotherapy where he can socialise with his friends, gain independence and be home schooled in a safe environment at the family home.
Band of Builders’ latest project is to help Kyle Sisson, the son of a Steel Erector from Hereford who was diagnosed with Cystic Fibrosis when he was just 3 days old.
As well as being born with Cystic Fibrosis, Kyle has no immune system meaning that he is extremely vulnerable to chest infections which have caused his lung function to drop to just 53%. Kyle has CF related diabetes and his pancreas does not function, he also has an extensive medication regime including a nebuliser 3 times a day and also daily physiotherapy.
At the age of just 15, Kyle has been diagnosed with clinical depression due to his illness taking its toll. Kyle is unable to socialise with friends away from the family home and is not able to go to school as he spends a lot of time in Birmingham Children’s Hospital, over the past 12 months the longest he’s been out of hospital at any one time is just five weeks.
The past 15 years have been extremely stressful for Kyle and his family and recently Kyle's mum suffered two strokes through the stress and worries of family life. Kyle's Dad also has severe arthritis, however continues to work as steel erector, now on light duties.
Band of Builders will be turning the families dream of Kyle having his own 'cabin' into a reality when volunteer tradespeople descend on Kyle's home from Saturday 26th October for a week.
Work will include: creating a cabin for Kyle which will be his safe haven to enjoy with friends and family .
Kyle's mum Debbie said: “We’ve tried to get him out with his mates, he’d go up to the ball court because he can play basketball for about a minute before he gets out of breath then he feels embarrassed. He’s fainted twice in front of his friends, the last time was with a group of girls - we had a phone call to go and pick him up because his lips were turning blue, he just looked at me and said “Mum, get me out of here”, we got him to the car and he burst out crying. He hasn’t been out since.”