Ronnie’s Project

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Objective

Ronnie’s condition means he is confined to areas that his motorised wheelchair can access and as a result the families current shower is no longer accessible.

Band of Builders aims to adapt the family bathroom to create a wet room suitable for Ronnie's changing needs.

 

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Background

Band of Builders’ latest project is to help Ronald Macleod, affectionately known as Ronnie, who was diagnosed with advancing Motor Neurone Disease (MND) in June 2018. Ronnie's condition is deteriorating rapidly - he has now lost his speech and has reduced head control, while his mobility has also started to be affected. Ronnie is also at the stage where he can no longer swallow and is being fed via a tube.

Ronnie, 63, became a plumber at the age of 15. At 21 he moved to a new company applying silicone sealant and spent the next 40 years in this field working on various projects.

Over the years Ronnie developed arthritis which led to both hips being replaced and a knee replacement. When his speech started deteriorating in July 2017 it was initially thought that he had suffered a stroke. After a year of tests, Ronnie was diagnosed in June 2018 with Motor Neurone Disease (MND). Ronnie's form of MND is known as Progressive bulbar palsy (PBP) which involves the brain stem. This form of MND mainly affects the muscles in the throat, tongue and face and causes difficulties with speech, swallowing, coughing and clearing the throat. Additional symptoms include less prominent weakness in the arms and legs, and outbursts of laughing or crying (called emotional lability). At the time of diagnosis, Ronnie was given just 18 months to live. However he has already surpassed doctors’ expectations and will be trialing a new drug soon.

On the same day Ronnie was diagnosed with MND his son was diagnosed with oesophageal cancer and given eight months to live. He died at the age of 40.

Ronnie was released from The Prince and Princess of Wales Hospice in Glasgow on January 30th, 2020. As the family's bathroom is no longer fit for purpose, a downstairs bedroom has been converted into a bathroom. However Ronnie is now unable to get in and out of the shower so work is urgently needed to convert the bathroom into a wet room suitable for Ronnie's needs.

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The Project

Band of Builders has teamed up with AKW Ltd, a company who specialises in accessible showers, bathrooms and kitchens to help Ronnie and his family by creating a fit for purpose bathroom at their home in Glasgow, Scotland so he has the appropriate hygiene facilities available to stay at home.

A team of 7 volunteers will be descending on Ronnie's home from 21st February for 3 days to and works will include:

  • Creating a wet room that is accessible and suitable for Ronnie's needs

To find out how you can get involved in this project or for material or financial contributions please contact projects@bandofbuilders.org