Chris’ Project

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Objective

Chris’ condition affects his balance and coordination which means he is unable to use his driveway unaided and struggles to negotiate the pathway to the front door in his wheelchair. Our aim is to make Chris' home more accessible to allow Chris to regain his independence.

 

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Background

Band of Builders’ latest project is to help Chris Joy, a plasterer who was diagnosed in 2018 aged 40 with Cerebellur Ataxia, a rare condition which only affects 10,000 people in the UK.

After his first symptom of feeling lightheaded whilst at work in July 2016 and over the course of two weeks Chris deteriorated rapidly leaving him with a life long degenerative condition. After 2 long years of investigations, Chris finally received a blanket diagnosis that he is suffering from a condition called Cerebellur Ataxia. Ataxia is an umbrella term for a group of neurological disorders that affect balance, coordination and speech and there are many different types that affect people in different ways and as of yet Chris has no specific diagnosis.

Chris' symptoms include loss of coordination, double vision, tinnitus, balance issues, speech issues and is wheelchair user 50% of the time however Ataxia is a progressive and while some forms of ataxia are treatable, for most cases there is still no cure.

 

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The Project

Ataxia effects Chris' coordination and balance which means that he is unable to access his property unaided as the driveway and pathway are uneven.

Band of Builders aims to help Chris and his family by overhauling the driveway at their home in Norwich, so he doesn't need to rely on his family and can regain his independence.

A team of volunteers was due to begin the project on 28th March however due to the coronavirus outbreak the project was postponed. We are pleased to announce that a new date has been confirmed and a team of volunteers from across the UK will begin the transformation on 10th October for 9 day. For more information or for material or financial donations please contact projects@bandofbuilders.org