Jamie’s condition means he is confined to areas that his motorised wheelchair can access and is unable to use the garden at his home to spend time with his two-year-old son and two young daughters from a previous relationship. Our aim is to make Jamie's garden accessible for him to enjoy spending time with his family and to adapt the kitchen to suit Jamie's needs.
Band of Builders’ latest project is to help Jamie Thompson, a builder who was diagnosed with Motor Neurone Disease in October 2014, aged 45.
At the time Jamie was given just three years to live and has already surpassed doctors’ expectations, but he is currently wheelchair-bound and has limited use of his hands.
Jamie’s condition means he is confined to areas that his motorised wheelchair can access and is unable to use the garden at his home to spend time with his two-year-old son and two young daughters from a previous relationship.
Band of Builders has joined forces with the Lighthouse Charity, which offers financial assistance to construction workers, to help Jamie and his family by overhauling the garden at their home in Malvern, Worcestershire, so he can finally access it properly to spend precious time with his family outside.
At least 40 volunteer tradespeople will gather at Jamie and Sarah’s home from Saturday, August 25th, for a week.
Work will include: landscaping the garden, adding a new French door and an extended decking area, removing the existing kitchen and replacing with a new one and all ancillary works.
Jamie’s partner Sarah Townsend said: “We can't begin to express our sheer excitement and gratitude about the up and coming project Band of Builders are so kindly going to be doing for us. Each day we wake up thinking that what will be happening next month is one big dream - we are relieved that it is actually going to be reality.
“Life is so different for Jamie these days and, consequently, for us as a family. We are now unable to go out to nice places and eat out together - two things we enjoyed more than anything prior to this awful, cruel disease taking its toll. Thanks to this project, Jamie will now be able to use his garden to its maximum, safely and contentedly, watching his children enjoy themselves outdoors - something he can at present only witness from the top decking area, or from the lounge window. We may even be able to enjoy a late summer BBQ or two.
“A new kitchen and more space within it and the flexibility to throw the doors open and eat outside as a family will mean that Jamie can maybe come and keep me company when I cook and we can talk about our day, which at present, we are unable to do. It will also be wonderful to have a room fully complete and usable in our home. Maybe we can even throw a dinner party once we have a lovely kitchen and external space to be proud of.
“Whilst this horrible illness is going nowhere, we as a family now have something to look forward to and enjoy together long term, which will make Jamie's time left with us all much happier.”